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| Re: Another Day Bites the Big One [message #34586 is a reply to message #34584 ] |
Tue, 28 September 2010 19:15   |
EMoon
Messages: 669
Registered: March 2009 |
Senior Member |
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A great deal of sympathy for another bad day.
Too many of those going around.
E
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| Re: Another Day Bites the Big One [message #34597 is a reply to message #34584 ] |
Wed, 29 September 2010 10:55 |
Esther S. Bernstein
Messages: 12
Registered: May 2010
Location: Brooklyn, NY |
Junior Member |
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I like the sound of that page-99 test. I just did it with Pegasus, and yes, it passes admirably! (Did I doubt for even a second that it would?) It shows both Sylvi's and Ebon's characters, it has a hint of the main plot - if I had read that one page when deciding whether to buy the book, it would have convinced me to buy it! I think I'll have to change my book-browsing process...
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Esther S. Bernstein
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| Re: Another Day Bites the Big One [message #34599 is a reply to message #34584 ] |
Wed, 29 September 2010 13:11 |
 CathyR
Messages: 577
Registered: July 2009
Location: NW England |
Senior Member |
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WaayHaay, well done on the Kent. Especially in view of the ME being a beast, as well as all the other aggravations.
Just when the caterpillar thought the world was over, it became a butterfly.
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| Re: Another Day Bites the Big One [message #34601 is a reply to message #34584 ] |
Wed, 29 September 2010 13:34 |
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SusFe
Messages: 27
Registered: May 2010 |
Junior Member |
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Sorry to hear about the continuing computer woes, the ME being ME-ish, and the nonresponsive builders. Hopefully by the time this reply goes up, some or all of these issues will have positively and happily resolved themselves, at least temporarily. (Fingers crossed.)
I was kindofsortofmaybe hoping that you might consider adding ROSES to your list of upcoming blogfodder-to-fall-back-on? I noticed that "Roses" is no longer on your Tags list, though, so maybe roses aren't a subject in and of themselves anymore.
[Updated on: Wed, 29 September 2010 13:37]
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| Re: Another Day Bites the Big One/ME [message #34641 is a reply to message #34639 ] |
Fri, 01 October 2010 08:29 |
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Marina
Messages: 245
Registered: January 2009
Location: Near San Jose CA |
Senior Member |
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Thank you! I can't keep them straight because to many folk I know have one or the other--and then there's multiple chemical senstivities, which one of my friends has so badly that she has to wear a special mask when she goes out, and sometimes looses so many spoons to dealing with it that she can only collapse for several hours. She can't go out in large crowds, such as a festival, a concert, or a convention/conference, because too many people will be wearing heavy scents, or there will be remains of cleaning chemicals...you get the picture.
One of my other friends who has MCS and CFIDS, says:
You might want to let people know that they might want to check out Nimodipine--it reportedly helps with the brain fog of CFIDS.
I think Robin gets the brain fog--I just can't tell when she's OT functioning from anything but her telling us!
A. Marina Fournier
❦If you want a golden rule that will fit everything, this is it: Have nothing in your houses that you do not know to be useful or believe to be beautiful ❧ William Morris❦
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| Re: Another Day Bites the Big One/ME [message #34651 is a reply to message #34642 ] |
Fri, 01 October 2010 12:51 |
claning
Messages: 266
Registered: February 2010
Location: California |
Senior Member |
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I too think ME and fibromyalgia are all part of the same spectrum. The good news is that no one dies of them, they don't necessarily progress and get worse with time, and since there is no actual inflammation going on, they don't do a lot of collateral damage to your body. The bad news is that no one knows what causes them, they don't spontaneously get better on their own, and there's no cure.
More people around here seem to have heard of Chronic Fatigue Syndrome than fibro, so my one-sentence explanation is "Fibromyalgia is like Chronic Fatigue Syndrome only with more pain and less fatigue." In my case at least, it's the joints that seem to hurt rather than muscles as such. That, and certain tender spots, most of which are (interestingly enough) located on acupuncture meridians.
(In case anyone else needs a basic explanation: the pain in fibromyalgia is real, you can measure the electrical changes in the nerves. However, the body is reporting pain from areas in which there is actually not any damage going on. No one knows why. There are medications that help -- I'm not badly enough off to need them so far -- but generally no one knows why, either.)
There's also a long list of other things that people with fibro/CFS may also have trouble with (I have something like 13 out of 14): I don't remember all of them, but they include insomnia, irritable bowel, chronic depression, migraines, sensitivity to hot weather, and most amusingly, something called neurally-mediated hypotension, which means you get lightheaded if you have to stand for long periods. (The way it was explained to me, your lower leg nerves send a message to the blood pressure regulating center in your brain, saying "Yo! Brain! There seems to be blood pooling down here, how about turning the blood pressure UP a bit?" And the brain says, "DOWN? Okay, we can turn the blood pressure DOWN...")
(Sorry if this is TMI, it's something I find interesting.)
O Chris Laning <claning@igc.org> - Davis, California
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| Re: Another Day Bites the Big One/ME [message #34666 is a reply to message #34642 ] |
Fri, 01 October 2010 16:24 |
b_twin_1
Messages: 2620
Registered: September 2008
Location: Victoria, Australia |
Senior Member
[Moderator] |
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| Robin wrote on Fri, 01 October 2010 09:15 |
... This last includes to just about every doctor/pharmaceutical drug I've ever been given--this is on my mind again today because DESPITE the craziness of yesterday I shouldn't be quite as wiped out and sick today as I am, and *that* is almost certainly either the anaesthetic or the anti-bacterial mouthwash.
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My Mum finds that the anaesthetic always has the biggest effect. She develops symptoms almost like a cold for a day afterward - and definitely the "feeling washed up" scenario. Even for minor procedures. Of course if there is air freshner in the room etc etc then there will be a double-whammy effect!!
I've got a plan so cunning you could put a tail on it and call it a weasel ~ Blackadder
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| Re: Another Day Bites the Big One/ME [message #34680 is a reply to message #34642 ] |
Fri, 01 October 2010 20:20 |
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Marina
Messages: 245
Registered: January 2009
Location: Near San Jose CA |
Senior Member |
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I'm sad to hear that you have so many sensitivities to so many drugs. I have two that remain--the other, antibiotics, was true *only* while i was pregnant, and 24 hours after, no allergy. Codeine and Vicodin--vomiting doesn't help my coughing problem, so I retreat to a cup of inexpensive singlemalt while in bed, hoping to sleep and without coughing much.
I'm interested in medical research, but don't have fibro/ME/CFIDS/MCS/constant pain, for which I am thankful. Bipolar, migraines & insomnia is quite enough for me.
A. Marina Fournier
❦If you want a golden rule that will fit everything, this is it: Have nothing in your houses that you do not know to be useful or believe to be beautiful ❧ William Morris❦
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