This is the worst the ME has been in years . . . possibly since I first started struggling up off the sofa again occasionally, about eighteen months after I went down with it for the first, spectacular, devastating time fourteen and a half years ago.*
And the furniture lorry arrives at 8 a.m. on Friday morning whether I’m ready or not. Whether I’m upright or not.**
It’s cooled off some, but not enough, and there’s still no rain—and no rain forecast.*** The hellhounds still aren’t eating. At all. I’m surrounded by half-packed boxes and piles of things that have been pulled off shelves or out of cupboards and . . .
. . . I think I need to go lie down again.
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* Which is to say thirteen years ago.^ Enough to make you superstitious.
^ Good thing I’m not likely to see in any more millennia. However you count it—2000 or 2001—it was not a good time for me and I might feel a little, well, superstitious, if I saw a lot of zeroes bearing down on me again. But even Methuselah didn’t quite make a thousand, so I’m assuming I’m safe.
** Last night—26 July—is one of our two big anniversaries: the meeting-Peter-Dickinson-at-the-Bangor-Maine-airport-oh-wow-oops one. We always go out and have a big splashy dinner. Last night we cancelled. I couldn’t have sat up in a chair long enough. I know. Worse things happen. But on the Comprehensive Demoralisation Scale it’s right up there.
*** There may be the odd local thunderstorm on Friday. If we actually have one of the odd local thunderstorms, which will be a first since this no-rain thing began about a month ago, it will certainly be punctiliously restricted to the corridor between the mews’ front door and the back of the lorry, all the rain^ will run straight into the gravel of the courtyard, and everybody’s gardens and potted plants will still be lying there gasping pathetically.
^ Except the rain-god’s special water-grenades which will explode under whatever plastic sheeting careful furniture removal men deploy on such occasions, and will leave irredeemable squiggles on the polished wood of Peter’s few nice old family pieces. May these prove to be runes for the cure of ME.
You may have to wait another day (or two) for how I got to yesterday, including the two days on the sofa in a coma, the vague realisation* Sunday afternoon that I hadn’t actually eaten anything in about forty-eight hours which might be contributing to my extreme lassitude, etc.** The point is yesterday I was better.
It’s been hot this week and muggy with it*** but mostly it eases up and cools off in the evenings which have (mostly) been pretty fabulous in the long summer twilight. So I was attempting to take patient hellhounds† for the first half-decent hurtle they’d had in about six days. In a light-headed moment of madness I decided to take a look in on the rec grounds, where I never take hellhounds any more because of the other people’s dogs problem. Lo and behold, fate appeared to be being unnaturally kind: there was a game on, one of those sports involving men in shorts kicking a ball.†† Hurrah! I thought. That means people will be keeping their dogs on leads to keep them off the (unfenced) playing field.
You see where this is going.
We were skirting the edge of the game, and I was paying more attention to not getting hit by a wild ball than by what might be coming up on us from the outside. While the playing field is flat there’s a bunker type slope off it with a few trees marking the boundary and then a gradual hill in its original contours. So you don’t necessarily see what’s bearing down (or up) on you till it’s much too late for evasive action. Not that it would have done us any good in this case.
I turned around idly in time to see a brown-and-white torpedo, ahem, surging toward us. CALL YOUR DOG! I shouted, thus destroying in three syllables what my cheese-grater, broken glass and drawn-dagger sore throat had begun to recover from.
There was no human in sight.
I’ve seen this dog around town with its people. Joy. It’s local. It’s a half grown Staffie cross, I think, and it’s growing up big. Unless there’s a line of (presumably show) Staffies with longer legs, this one’s got something else in there. Mastodon possibly. It’s not aggressive yet, but give it time. It’s clearly growing up to be a thug. It sailed into the hellhounds with none of that piffling puppy posturing and Chaos, who is ordinarily happy to play with the most bumptious puppy, was . . . well, at first he was only nonplussed. I was more worried about Darkness, who is still pretty fragile†††.
A 12- or 13-year-old girl shambles up and makes a couple of ineffectual grabs at the Young Stay-Puft Marshmallow Man. Eventually, and this is now over a minute since this delightful meeting began, some idiot woman who has finally, I don’t know, got off her mobile phone and noticed her dog (and her daughter) have disappeared?, comes streaking up over the bank. Where has she been? And she proceeds to tell me that I should stand still so she can grab her dog. YOU SHOULDN’T LET IT OFF THE LEAD TILL IT’S OBEDIENT! I shrieked, thus setting convalescence and the possibility of my ever singing again‡ back by six weeks or half a millennium. She realizes, perhaps, that there is no reasoning with me—no, there isn’t—and attempts to concentrate on seizing her miscreant.
The whole episode took probably five minutes. This is a long time when it involves an off-lead dog out to make as much mayhem as its adolescent brain can yet conceive. The only bright spot—aside from the fact that it hasn’t fully grown into its obvious gift for malice—was that Darkness, probably because he was still drugged to the gills, was only unhappy, he wasn’t doing his full protective berserker thing thank you God.‡‡ Chaos, however, was increasingly freaked out, so Young Stay-Puft concentrated on him.
I didn’t think about it at the time—I was too busy trying to hang onto my distressed hellhounds in my own not too steady condition, and with this bloody woman telling me to keep still—but I’ve thought about it too much since. It wasn’t just the torpedo approach or the lack of puppy love-me moves. All the brute’s hair was up and its head was low and its look intent—and it singled out Chaos because he was providing more fun. In six months it’s going to be eating small children.
I despair. And after that adrenaline spike, I’ve been back on the sofa again—you were going to get the first somewhat-post flu bulletin‡‡‡ last night.
And my throat hurts.
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* Very vague: you don’t think well in a coma
** Also, at sixty-one, you don’t have the bounce you did ten or forty years ago. You can just sleep—or coma—off a lot when you’re twenty, and then get up groggily at a strange hour, make a large platter of scrambled eggs, and be fine. At sixty-one you need a little more continuing support.
*** Speaking of producers of lassitude
† Let me also say that the hellpack have been brilliant this week. Granted hellhounds start hating the heat even sooner than I do but they do still like to get outside for a panting, oppressed and put-upon amble, and they’ve only been getting slow groping turns around the block for necessary purposes with me leaning on the trees and stopping at every bench—thank God there are benches both in the churchyard and the wide strip of green alongside the road to the mews.^ And the hellterror, bless her manic little heart, has been amazing. Now, also granted that she is highly self motivated and you can pretty much just let her out of her crate and stand back while she caroms off the walls, but even overseeing her is exhausting when you’re only about .05% of normal. I’m not even sure she got fed as often as usual. But she was always glad to see me and did not take advantage when I tottered outdoors with her—she could have had me over if she’d wanted to—and went cheerfully back into her crate^^ and was quiet for hours without complaint^^^. Like the man said, You can’t always get what you want/ But if you try sometimes well you just might find/ You get what you need.
^ I’ve had three dog minders, each one more disastrous than the last. I really don’t want to start the countdown to catastrophe on a fourth.
^^ suitably bribed
^^^ Except of course when someone came to the front door or the wind through the garden door made a funny noise or the dishwasher went click-clump as it changed cycles or the book you had been pretending to read fell out of your nerveless hands to the floor or she objected to the music on the radio+ or . . . whatever. She’s still a bull terrier. However she is also a bull terrier who shuts up when requested.++
+ She was right about this. It was Harrison Birtwhistle. I managed to assume verticality long enough to turn it off.
++ After only a little grumbling. Unless it’s clearly pirates and I’m just not taking the threat seriously enough.
†† I have no idea. Although there are several men in shorts kicking balls sports, I believe.
††† See: I do not want another week like this one, and, you may have to wait for the details of how I got to yesterday.
‡ I am really missing singing. It’s like missing a body part.
‡‡ Yes. I wish I knew why God doesn’t solve the off-lead dog problem that has very nearly wrecked my pleasure in having dogs. The hellhounds’ little peculiarity about food pales in comparison.
‡‡‡ Trust me there is plenty of material.
. . . insofar as ‘dreading’ is a suitable word for anything that happens on a blog. As I say (regularly) to Blogmom when I’ve screwed up yet again, ‘It’s a blog. Nobody dies.’
Well, nobody dies, but this is the week when you will not get a KES for the foreseeable future. This flaming sore throat is showing no sign whatsoever of folding its tents and silently stealing away. And it’s wearing me down, you know? It’s no worse than it was on Wednesday, it’s just no better, and the rest of me is following it down into the abyssal pit of lethargy* and brainlessness.** And I’m not going to post a KES ep until I’ve had a brain available to look it over with first. As I said last week, the Black Tower interpolations were a late addition, but once one thing has come a bit adrift other things tend to follow. Story-telling entropy. Or A Sound of Thunder.***
And you know one of the worst things about this extremely unpleasant lurgy? Chocolate doesn’t taste good. How am I supposed to comfort myself in my affliction when I am denied chocolate?
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* Hurtling my two shifts of hellpack is interesting in a losing all your money in Las Vegas, your house just fell down or your beloved just ran off with a fireperson^ and what really hurts is that he/she took the dog^^ kind of way. As I staggered after them I was thinking it could be worse. The hellhounds are pretty frelling laid back at the moment possibly because they stopped eating again and there’s a limit to the amount of force feeding I have the morale/energy for, and at the moment I can’t talk to the vet because I can’t talk. But they don’t require miles across rough country as they have been known to do when they were younger, possibly because at present their bellies are starting to stick to their backbones.^^^ And the hellterror . . . on a long extending lead, I can just mosey along while she hucklebutts her little cotton socks off . . . bringing me especially desirable, well-chewed, sticky and drooly sticks and plastic bottles occasionally so I don’t feel left out. Gee. Thanks.
I don’t actually get this sick very often. I was lying on the floor with my head in the hellhound bed# last night listening to this: http://www.bbc.co.uk/programmes/b048ngny ## and thinking, I remember lying on the floor with my head in the hellhound bed listening to that bloke read Paradise Lost on Radio Three and that was several years ago. Uggggh. Not nearly long ago enough, if you follow me. I could have gone on not feeling this bloody for any number more years.
^ My mind seems to run on fire for some reason
^^ And dogs. For some reason.
^^^ I know they don’t like the taste of the drug they’re on, because back during some recent era when they were occasionally eating, if one of them missed their drug-laced dinner and the other one didn’t, I was liable to find the one who was facing a rerun of the drugged food trying to eat the drug-free final snack of the other. They need to be on this *&^%$£””!!!!! drug, it’s working, but it hasn’t worked enough yet. I am so frelled.
# I changed their bedding Wednesday night. It’s all nice and clean+ and a good deal softer than the floor.
+ If HAIRY
## This should be Hesperion XXI at the York Early Music Festival. The BBC web site is such a nightmare I never trust it. But if it isn’t, you can look it up on the schedule, Thursday night at 7:30 on Radio Three and it’s fabulous. I think it’s one of those only available for seven days, so get it while it’s there. I’m going to listen to it again.
** I was supposed to go Street Pastoring tonight. Not a chance. Whimper. I keep wondering where I picked up this particular lurgy. See previous entry about the downside of interaction with other human beings. It could have been last Saturday on the street, for example.
*** I’m not a big fan of Wikipedia at the best of times.^ So it’s probably not surprising I feel that the article on ‘the butterfly effect’ might have mentioned the Bradbury story. I know there’s a difference between the beating of butterfly wings creating major weather and the wrong guy getting elected because your big fat boot stepped on one back in the Cretaceous^^ but . . . the butterfly effect article even mentions that it’s a popular trope in SF&F.
^ And that meatloaf at the head having come out as rantingly, pathologically against homeopathy+ means I will stay not a big fan
+ Let me just say that anyone who thinks homeopathy is nonsense hasn’t done their homework=
= Self-prescribing is not ideal–see above about not posting a KES while I have no discernible brain–but I am walking. Sometimes a lurgy just has your name on it. And back in the days when I still believed in standard medicine I got prescribed an awful lot of garbage that did me significant harm. Whatever this is, it’ll go away . . . eventually.
^^ How do we know it wasn’t the microorganisms in the soil? Just because the butterfly is flashier?
You were due to get a blog post tonight and I have stomach flu. As these things go it’s mild* but it’s knocked my energy level over and squashed it flat, because that’s what happens when you have ME and some blasted interfering ‘acute’ comes along and joins the party.
Meanwhile I had my observation duty at the Samaritans last night—and was aware of feeling a little peaky** but that might have been tension level***—and I have my first official duty shift tomorrow. And I’m going. So let’s hope I can sit in a chair and speak in complete sentences, okay? I want to do this. And I don’t want my mentor to have to do it for me because I’m convulsing on the floor. Arrrrrrrgh.†
* * *
* May it stay mild, thank you very much
** I’ve actually been peaky most of this week, the kind of peaky that makes me think ‘oh help the ME is getting worse I’m not going to be able to keep on floundering through as much stuff as I do if this is settling in to be the new system’—also PAIN. Golly. I really do not like pain and it makes me CRANKY^ and at my age it also makes me feel dangerously old. Having the intensification of the ME coalesce into something like stomach flu, which can reasonably be presumed will go away again, is actually a relief.^^
^ I would have been such a bad martyr. I wouldn’t have forgiven anybody.
^^ This is how acutes tend to manifest with me, that the ME gets worse and then as if spits out the acute.+ But of course during the run up I don’t think ‘oh I must be coming down with something’ I think OH WOE MY LIFE IS OVER.
+ Not everyone with ME follows this pattern but it is a common one.
*** There weren’t any ordinary people who just wanted a chat last night—yes the Sams get those although that’s not what they’re for—YEEEEP. The Sams really are the sharp end. Yeeeeeep. I was there mid-shift so I could watch the handover, the point being that there’s always someone available to answer a ringing phone and there’s always a debrief every shift with the admin^, so I had a chance to speak to four duty-shift Sams plus my mentor^^ plus yesterday’s admin head and I was saying yeeeeep and they were all saying sympathetically, well, yes. That’s what we do.
It has come up constantly from the first information evening when you’re still deciding whether to apply or not that the Sams support their people. What the Samaritans do is rough. And you can’t take it home with you or you won’t be able to do the job for long. Hence constant, structured checking from admin and colleagues that you’re okay.
The other crucial aspect of this is the Sams’ rule of ABSOLUTE CONFIDENTIALITY. The only people you’re allowed to discuss Sams’ callers with is other Sams. And I had a little taste of what this is going to mean in practise last night. Intellectually I totally get it and totally agree with it too—that’s what makes the Sams such a great resource. Have something that’s eating holes in you that you either have no one to discuss it with or you just can’t discuss it with friends and family? Ring the Sams. You can tell them anything, they’ll not only listen, it won’t go any farther. Terminally ill and want to talk about death but your family are all in denial? Ring the Sams. Suicidal from the break-up that everyone thinks is your fault because they won’t hear the truth about your ex-partner? Ring the Sams. Your dog died and nobody gets it that it matters? Ring the Sams.
But to engage, to empathise, as a Sam you do have to get alongside whoever you’re talking to. And you also have to put it down again when you put the phone down.
I’ll learn to do this—as I told my mentor I’m reasonably confident about the long term: short term is the yeeeeeep—but the new skill is not being able to talk about it. I’m a girl. When stuff gets to me I find a friend to talk it through with. It’s what girls do. I wrote a couple of emails to friends last night and I probably sounded pretty distracted because what I was chiefly thinking about was what I couldn’t say. ^^^ Grim stuff is undoubtedly more of a burden when you can’t ask a trusted friend to help you lever it off and lay it down.
^ The admin are all practising Sams too. They know what you’re doing, what life on the, ahem, line is.
^^ Whom I like a lot, by the way. I feel in safe hands with her: that she’ll catch me if I screw up but she won’t make me feel like a retarded liver fluke for screwing up.
^^^ It’ll be easier once I’ve made some friends in the Sams. The Street Pastors keep schtum too but since most of what we do happens in public and out on the street the lockdown isn’t as absolute. And I went into the SPs as one of four from St Margaret’s, the other three of whom were already my friends by the time I started doing duty shifts. Clearly I need to send that email to the other five trainees of my Sams intake saying, so what about meeting up for that beer then?
† What you guys really want to be hoping/praying/dancing around bonfires for however is that I’m sufficiently alive and functioning to tweak another chapter of KES and release her to the world Saturday night.
. . . moving house. Removal men with rippling muscles and a large lorry are coming 1 August. Yessssssss. Any of you of a praying persuasion please pray it goes no more catastrophically than these things usually do. And more important that Peter finds he positively likes it there at Third House once he’s in. Any of you not of a praying persuasion are nonetheless welcome to dance supplicatorily around bonfires dedicated to minor deities who ease tiresome mortal rites of passage like house moves. I personally prefer Jesus, but I’ll take any good will on offer.
And minions of British Telecom, that delightfully efficient and customer-oriented corporation, are coming the day before to install necessary wiring because, as regular blog readers may recall, BT declares that there are no lines to Third House, that eighty or ninety year old cottage in the centre of town and with a phone jack in the kitchen which you might think BT would find a little embarrassing. HOWEVER we have got round my bootless fury on this topic first by the fact that we’re going to want wireless broadband and the connections for that probably do need to be updated from whenever . . . and second I just caved when the very loud, relentlessly cheerful woman who was brokering the deal rushed past the part about how they’d do all this for free if we bought their broadband. So we’re buying their broadband. And I am a weak, cringing worm. Yes. I just want it over with.
Eleanor finished cleaning Third House’s kitchen today.*
Jonas, who is a builder by trade and can do anything, is plumbing in the dishwasher because all the local plumbers are booked until Christmas 2017.
Atlas is getting on with carving out the Desk Aperture.**
Nina and Ignatius are coming twice this week to do anything someone else hasn’t got to first. They may make a start on clearing the space for my shed. And I may ask Ignatius to put up some shelves, since there is only one of Atlas and he only has two hands. Fie. You’d think someone who works in three dimensions for a living would have at least four.
And the hellhounds ate lunch for the first time in weeks.***
But too much stuff working might go to my head. So the ME gallantly stepped in at this point and slapped me down.† ARRRRRRGH.†† Therefore I think I’ll make one of my hilarious attempts to go to bed early.††† Night night.‡
* * *
* She has been giving me a very hard time about all the things I won’t let her throw away. That’s a perfectly usable jar! Leave it alone! She even thinks I have too many books. Friendships have been lost over comments like these. But not when someone is cleaning your kitchen for free.
** I’m failing to get on with finding somewhere to put all the books thus made homeless. See previous footnote.
*** Don’t get too excited. They didn’t eat dinner.
† Do I really need the ME too? It’s not like the next few weeks are going to be arid with ease and perfection. In the first place I still have 1,000,000 phone calls to make to/about various which will be quite lowering enough when 60% or so produce the equivalent of all the local plumbers being booked till Christmas 2017. I’m reminding myself we already own the house, no one can gazump us, that medieval torture device that has somehow been allowed to live on in the laws of England, Third House is in the same town and only half of us are moving anyway. Hey, my piano is moving! That counts! Also the hellhounds are sure to Faint in Coils which will fail to be edifying. But it could be a lot worse. Hold that thought.
†† It’s The Little Things. My last clean white shirt this morning had a big black spot at the centre of the neckline WHAAAAAAT?? I got the worst of it out with a sponge and wore it anyway. Then I put on my pale blue white floral cotton jeans which are automatically a calamity magnet because of the colour. And I was out in the garden this morning examining something or other while Pav had her morning pee and she galloped up to me and sprang . . . leaving giant muddy footprints all over my pale blue with white flowers jeans ARRRRRRRRGH. There was language. Pav ignored this, of course, because it had nothing to do with her. She usually does jump on me first thing in the morning . . . but this usually happens indoors, I’ve never taught her not to^, and the only reason the garden was muddy is because I’ve been WATERING because we haven’t had any rain in yonks.^^ ARRRRRRRRGH. Well I’m wearing the blotched up jeans anyway too, but everything goes in the washing machine tonight.
^ Theoretically she knows ‘off’. She doesn’t know ‘don’t jump up in the first place you muddy-footed monster’. Usually I find being jumped on by a thrilled-I-exist bull terrier ridiculously charming.
^^ It’s been long enough that a few Souvenir de la Malmaison roses have been unable to contain themselves to wait to go brown and mouldy in the next major downpour and have popped out properly. It only takes a few to make my entire tiny walled garden smell divine.
††† HAHAHAHAHAHAHA. I kill myself, I really do.
‡ It’s too hot to sleep anyway. It’s not hot hot but it’s that kind of hot that sits on your chest like an incubus and won’t let you breathe.